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Catholic News 2

(Vatican Radio) Pope Francis on Friday addressed participants of an International Conference on the Progress of Regenerative Medicine and its Cultural Impact. The Conference is being sponsored by the Pontifical Council for Culture, the Stem for Life Foundation, and the STOQ Foundation.The 2016 conference focused on pediatric cancers and rare diseases, as well as diseases that occur with aging. It featured talks and discussions with leading cell therapy scientists, physicians, patient advocates, ethicists, philanthropists, leaders of faith and government officials.In his address, Pope Francis focused on three aspects of the commitment of the Pontifical Council for Culture, and the institutions working with it.“It is fundamentally important that we promote greater empathy in society,” the Pope said, “and not remain indifferent to our neighbour’s cry for help, including when he or she is suffering from a rare disease.” Pope Francis described this aspect ...

(Vatican Radio) Pope Francis on Friday addressed participants of an International Conference on the Progress of Regenerative Medicine and its Cultural Impact. The Conference is being sponsored by the Pontifical Council for Culture, the Stem for Life Foundation, and the STOQ Foundation.

The 2016 conference focused on pediatric cancers and rare diseases, as well as diseases that occur with aging. It featured talks and discussions with leading cell therapy scientists, physicians, patient advocates, ethicists, philanthropists, leaders of faith and government officials.

In his address, Pope Francis focused on three aspects of the commitment of the Pontifical Council for Culture, and the institutions working with it.

“It is fundamentally important that we promote greater empathy in society,” the Pope said, “and not remain indifferent to our neighbour’s cry for help, including when he or she is suffering from a rare disease.” Pope Francis described this aspect of their work as “increasing sensitivity.”

The Holy Father also emphasized the importance of research, in terms of “education and genuine scientific study.” Education, he said, is necessary not only to develop students’ intellectual abilities, but also to ensure “human formation and a professionalism of the highest degree.” Research, meanwhile, “requires unwavering attention to moral issues if it is to be an instrument which safeguards human life and the dignity of the person.”

The third aspect highlighted by Pope Francis was “ensuring access to care.” A desire for profit should never prevail over the value of human life. This, the Pope said, “is why the globalization of indifference must be countered by the globalization of empathy.” By drawing attention to and educating people about rare diseases, by increasing funds for research, and by promoting “necessary legislation as well as an economic paradigm shift,” he continued, “the centrality of the human person will be rediscovered.”

Pope Francis concluded his address with a word of encouragement for those participating in the Conference. “During this Jubilee Year, may you be capable and generous co-operators with the Father’s mercy.”

Below, please find the full prepared text of Pope Francis’ remarks:

Address of His Holiness Pope Francis

to Participants of the International Conference

on the Progress of Regenerative Medicine and its Cultural Impact

Paul VI Audience Hall, Vatican City

 

Friday 29 April 2016

 

Dear Friends,

            I am pleased to welcome all of you. I thank Cardinal Gianfranco Ravasi for his words and, above all, for having organized this meeting on the challenging problem of rare diseases within today’s social and cultural context. During your discussions, you have offered your professionalism and high-level expertise in the area of researching new treatments. At the same time, you have not ignored ethical, anthropological, social and cultural questions, as well as the complex problem of access to care for those afflicted by rare conditions. These patients are often not given sufficient attention, because investing in them is not expected to produce substantial economic returns. In my ministry I frequently meet people affected by so called “rare” diseases. These illnesses affect millions of people throughout the world, and cause suffering and anxiety for all those who care for them, starting with family members.

            Your meeting takes on greater significance in the Extraordinary Jubilee Year of Mercy; mercy is “the fundamental law that dwells in the heart of every person who looks sincerely into the eyes of his brothers and sisters on the path of life” (Misericordiae Vultus, 2). Your work is a sign of hope, as it brings together people and institutions from diverse cultures, societies and religions, all united in their deep concern for the sick.

            I wish to reflect, albeit briefly, on three aspects of the commitment of the Pontifical Council for Culture and institutions working with it: the Vatican Science and Faith Foundation–STOQ, the Stem for Life Foundation, and many others who are cooperating in this cultural initiative.

The first is “increasing sensitivity”. It is fundamentally important that we promote greater empathy in society, and not remain indifferent to our neighbour’s cry for help, including when he or she is suffering from a rare disease. We know that we cannot always find fast cures to complex illnesses, but we can be prompt in caring for these persons, who often feel abandoned and ignored. We should be sensitive towards all, regardless of religious belief, social standing or culture.

            The second aspect that guides your efforts is “research”, seen in two inseparable actions: education and genuine scientific study. Today more than ever we see the urgent need for an education that not only develops students’ intellectual abilities, but also ensures integral human formation and a professionalism of the highest degree. From this pedagogical perspective, it is necessary in medical and life sciences to offer interdisciplinary courses which provide ample room for a human formation supported by ethical criteria. Research, whether in academia or industry, requires unwavering attention to moral issues if it is to be an instrument which safeguards human life and the dignity of the person. Formation and research, therefore, aspire to serve higher values, such as solidarity, generosity, magnanimity, sharing of knowledge, respect for human life, and fraternal and selfless love.

The third aspect I wish to mention is “ensuring access to care”. In my Apostolic Exhortation Evangelii Gaudium I highlighted the value of human progress today, citing “areas such as health care, education and communications” (52). I also strongly emphasized, however, the need to oppose “an economy of exclusion and inequality” (53) that victimizes people when the mechanism of profit prevails over the value of human life. This is why the globalization of indifference must be countered by the globalization of empathy. We are called to make known throughout the world the issue of rare diseases, to invest in appropriate education, to increase funds for research, and to promote necessary legislation as well as an economic paradigm shift. In this way, the centrality of the human person will be rediscovered. Thanks to coordinated efforts at various levels and in different sectors, it is becoming possible not only to find solutions to the sufferings which afflict our sick brothers and sisters, but also to secure access to care for them.

            I encourage you to nurture these values which are already a part of your academic and cultural programme, begun some years ago. So too I urge you to continue to integrate more people and institutions throughout the world into your work. During this Jubilee Year, may you be capable and generous co-operators with the Father’s mercy. I accompany you and bless you on this journey; and I ask you, please, pray for me. Thank you.

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(Vatican Radio) Pope Francis warned Christians against having double lives, displaying an outer facade of light but having darkness in their hearts. He urged them to walk in the light and not tread dark paths, saying God’s truth cannot be found there. The Pope’s remarks came during his homily at Mass celebrated on Friday morning in the Santa Marta residence.Taking his cue from the reading of St John’s First Letter, Pope Francis reflected on the eternal struggle against sin, saying we must be pure like the Father but even if we sin we can count on his pardon and his tenderness. He stressed the Apostle’s warning to believers to tell the truth and not have double lives, saying one thing but doing another.    Walk in the light“If you say you are in communion with the Lord, then walk in the light.  But no to double lives!  Not that! That lie that we are so used to seeing and where we too sometimes fall (into temptation), don’...

(Vatican Radio) Pope Francis warned Christians against having double lives, displaying an outer facade of light but having darkness in their hearts. He urged them to walk in the light and not tread dark paths, saying God’s truth cannot be found there. The Pope’s remarks came during his homily at Mass celebrated on Friday morning in the Santa Marta residence.

Taking his cue from the reading of St John’s First Letter, Pope Francis reflected on the eternal struggle against sin, saying we must be pure like the Father but even if we sin we can count on his pardon and his tenderness. He stressed the Apostle’s warning to believers to tell the truth and not have double lives, saying one thing but doing another.    

Walk in the light

“If you say you are in communion with the Lord, then walk in the light.  But no to double lives!  Not that! That lie that we are so used to seeing and where we too sometimes fall (into temptation), don’t we?  To say one thing and do another, right?  It’s the never ending temptation.  And we know where that lie comes from: in the Bible, Jesus calls the devil ‘the father of lies’, the liar. It’s for this reason that this grandfather says with infinite tenderness and meekness to the ‘adolescent’ Church: ‘Don’t be a liar! You are in communion with God, walk in the light. Do works of light, don’t say one thing and do another. No to double lives and all that.”

Bigger than our sins

Noting how John began his Letter with the greeting, ‘children’, Pope Francis said this affectionate beginning is just like the tone of a grandfather towards his ‘young grandchildren’ and reveals the tenderness and light contained in this reading. It also recalls Jesus’ words when he promised “rest” to all those “who labour and are overburdened.” In the same way, the Pope continued, John urges his readers not to sin but if somebody does, to not be discouraged by this.

“We have a Paraclete, a word, an advocate, a defender at the Father’s side, it’s Jesus Christ, the Upright One. He makes us righteous. It is He who pardons us. A person may feel like saying to this grandfather who gives us this advice: ‘But is it such a bad thing to have sins?’ ‘No, a sin is a bad thing! But if you have sinned, look at who is waiting to pardon you.’ Always! That’s because He, our Lord, is greater than our sins.”

The Pope concluding by saying this is God’s Mercy and his greatness and it’s from Him alone that we can get our strength.   

“We must walk in the light because God is Light.  Don’t walk with one foot in the light and the other in darkness.  Do not be liars.  And one other thing: we have all sinned. Nobody can say: ‘This man is a sinner, this woman is a sinner.’  I, thanks to God, am upright.’ No, only one is Upright, He who paid for us. And if somebody sins, He is waiting for us and pardons us because He is merciful and knows very well what we are shaped from and remembers that we are but dust. May the joy that this Letter gives us, carry us forward in the simplicity and the transparency of the Christian life, above all when we turn to the Lord… with truth.”

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Denver, Colo., Apr 29, 2016 / 03:02 am (CNA/EWTN News).- "I disapprove of what you say, but I will defend to the death your right to say it."This quote from British author Evelyn Beatrice Hall (often misattributed to Voltaire) might sound rather foreign on many college campuses throughout the country today, who in many ways seem to prefer to be defended from the First Amendment rather than to defend it.Last month, students at Emory University in Atlanta protested that their safety was threatened by chalk messages showing support for Donald Trump for president. The president of the University agreed.In early March, two student government representatives at Bowdoin College faced impeachment proceedings for attending a fiesta-themed party with mini sombreros, since the event was deemed an example of “ethnic stereotyping.”  This week, North Carolina’s Lt. Gov. Dan Forest proposed a policy for the state’s public university system that would punish &...

Denver, Colo., Apr 29, 2016 / 03:02 am (CNA/EWTN News).- "I disapprove of what you say, but I will defend to the death your right to say it."

This quote from British author Evelyn Beatrice Hall (often misattributed to Voltaire) might sound rather foreign on many college campuses throughout the country today, who in many ways seem to prefer to be defended from the First Amendment rather than to defend it.

Last month, students at Emory University in Atlanta protested that their safety was threatened by chalk messages showing support for Donald Trump for president. The president of the University agreed.

In early March, two student government representatives at Bowdoin College faced impeachment proceedings for attending a fiesta-themed party with mini sombreros, since the event was deemed an example of “ethnic stereotyping.”  

This week, North Carolina’s Lt. Gov. Dan Forest proposed a policy for the state’s public university system that would punish “those who interrupt the free expression of others," such as hecklers during a speech.

The rise of a culture designed to protect students from words and ideas that seem threatening has some experts questioning the effect that this hyper-sensitivity could be having on higher education and society at large.

Defining the terms

In a long-form piece in The Atlantic in Sept. 2015, Greg Lukianoff and Jonathan Haidt explored this phenomenon that they dubbed “The Coddling of the American Mind.” Words like ‘microaggressions’, which are small, seemingly harmless words or actions that can be perceived as threatening, and ‘trigger warnings’, which are alerts that professors are expected to issue for potentially offensive or provocative material, haved moved from obscure terms to everyday language on campus, they said.

“This new climate is slowly being institutionalized, and is affecting what can be said in the classroom, even as a basis for discussion,” they wrote.

Another recent piece in the Atlantic by Conor Friedersdorf explored a new scholarly paper by sociologists Bradley Campbell and Jason Manning, who say that this new cultural phenomenon is different from previous cultures that have come before it, such as cultures that valued dignity or honor when faced with an aggrievance.

Now, the new cultural norm is “victimhood culture”, which values immediately and publicly airing one’s grievances, in hopes to “provoke sympathy and antagonism” toward the initial offender by “advertising (one’s) status as an aggrieved party,” Friedersdorf wrote.    

A Catholic college perspective

While many public universities are in the throes of grappling with the consequences of victimhood culture, some Catholic liberal arts schools say they have not seen the same cultural shift on their campuses.

Anne Forsyth is the Director of College Relations and Assistant to the President at Thomas Aquinas College (TAC), a Catholic liberal arts school in Santa Paula, California. She said she found it concerning when, for the first time a few years ago, she started hearing about “free speech zones” on college campuses.

“I remember thinking ‘What is this? The whole country is a free-speech zone, what are they talking about? This is America, we all have the freedom to speak.”  

But while she was aware of the culture of victimhood picking up speed on other college campuses, Forsyth said the student body of Thomas Aquinas seems to be untouched by the phenomenon.

“What we see here is endless conversation on all subjects, on which people can really disagree,” she said.

The reasons for the differences are complex, she added. One of the reason is the Christian faith of most of the students, she said, and that “where charity and love prevail, hopefully things will go a little bit better, so hopefully feelings won't be so hurt, people won't seem so doctrinaire,and those things are somewhat muted.”

Other reasons are likely the differences in pedagogy and curriculum, she said. Every class at TAC is in the form of a conversation-based seminar where the students are able to engage with their subjects on a level that wouldn’t be as possible in a large lecture class of hundreds of students, she said.

This engagement allows students to be able to grapple with differing opinions and ideas in ways that other students may not be being equipped to do, she said.

“I think it’s the advancing of an idea different or contrary to your own is what is triggering this (victimhood cultures), precisely because they just don't have the tools to deal with it,” she said.

The school also takes steps to reduce “emotional reasoning” in the classroom by requiring students to address each other during discussions as “Mr.” or “Miss”, she added.

“We're trying to minimize the personal part of it,” she said. “Not that everybody doesn't have a personal stake in these arguments or discussions, because we do, but we don't want to be personal about it in the point of feelings.”

Thomas Aquinas College also provides students with a classical education, with required courses in areas of philosophy, theology and literature that used to be the bread and butter of higher education.

What's God got to do with it?

Dr. William Fahey is the president of Thomas More College, a small, Catholic liberal arts school in New Hampshire. He said that the recent articles about “victimhood culture” are identifying something that’s been happening for several decades in higher education and the culture at large.

“If you have what Benedict XVI called ‘the emancipation of man from God’ in the public square, then it means certain things are going to be absent, certain things are going to become more prominent,” he said. “So if you're not allowed to talk about God at the center, then you can't have traditional ethics, you simply can't. You can't have virtue, you can't have justice, you can't have transcendent things because they actually require some sense of the transcendent.”

“So it’s no surprise if you have a college or university or a country where there is either no discussion allowed or a very perverse discussion of God allowed, you can't have ethics, you can't have real solidarity, because there's nothing that unites everyone,” he added.  

If there is no God, Fahey said, then the only thing that matters is gaining power, and many students have realized the power that comes with claiming victimhood status in today’s world.

But like Thomas Aquinas College, the student body at Thomas More has also not experienced the cultural shift seen at larger public universities for various reasons.

“We have a very traditional Catholic culture here that unifies everyone and we have a sense of justice, so if someone actually feels aggrieved, the categories for understanding that are virtue ethics, you could only understand your irritation as something significant because you perceive there's a violation of justice here, not merely annoyance,” he said.

Thomas More College is also a unique model in that is has less than one hundred students, allowing the student body to become a very tight-knit Catholic community.

“It would be comical at Thomas More College to talk about being marginalized, because one small single Catholic community, we're united in our faith, so we're not going to be prey to the same kind of feeling of alienation that most people in modern society and certainly most college students feel,” he said.

Also similarly to Thomas Aquinas College, Thomas More requires students to take many courses in the humanities and literature, which allow them to see the world through many different perspectives, he said.

“Someone who might be feeling marginalized is going to have a tough time seeing that as significant when they're reading tragedy and hardship, vice and virtue, they're reading kind of the broad sweep of human experiences across many different time zones, many different cultures, many different races,” he said. “And you realize, ‘Huh, there is something called humanity, and it’s foolish to say I'm going to define myself and my actions by (a more narrow category).’”

A Catholic psychologist weighs in

Dr. Gregory Bottaro is a clinical psychologist practicing with Catholic Psych Institute in Connecticut. He said that while it’s necessary and important to recognize that some people have experienced real trauma in their lives, the solution is not to shut themselves off to any experience that might be uncomfortable for them.

“The reality is that real trauma happens,” he said. “If you have somebody who’s been raped and they’re hearing a story about (rape)...a trigger warning essentially can be a positive thing to give people a heads up that we’re approaching an area that may trigger something for you, but the fact of the matter is that we are going to approach it,” he said.

“So that’s the intent, to just give people the awareness that if there’s something here you may have struggled with, get ready, get yourself ready for what we’re about to do.”  

But when awareness takes the form of censorship of differing opinions, then it’s gone too far, he said. For example, trigger warnings, which can be used as an appropriate way to alert someone that certain material may trigger something for them, are often used as an excuse to not engage with material at all.

“The problem is that people take them as permission to avoid or stay away from the material that’s being warned about,” he said.

One of the fundamental definitions of overall health, Dr. Bottaro added, is flexibility, and that applies whether one is referring to biological, physical, spiritual or emotional health.

“Flexibility is an intrinsic quality of overall health, and that means that you can have the ability to talk to different kinds of people, have different opinions, dialogue with different people with different perspectives or different cultural views, different world views, and that’s ultimately what’s healthy,” he said.

Therefore, the inability to handle differing opinions could be a sign of psychological sickness or disorder.

The solution?

A Catholic worldview can be extremely helpful for people encountering differing ideas and opinions, because they are grounded in something fundamental, Dr. Bottaro said.

“A Catholic worldview gives us a stable foundation that goes to the very root of what it is to be human,” Dr. Bottaro said. “So if our foundation is at the deepest root, then we don’t have t be afraid to dialogue with other people from different perspectives, we don’t have to be afraid of what other people might say to us, because we’re grounded on the deepest foundation possible.”

“And that’s ultimately what’s missing in our culture, that’s why they need these safe spaces, because they don’t have any kind of deeply rooted foundation, they’re not grounded, and so they need to stop people from saying scary things because it’s going to knock them off balance,” he added.

Some secular universities and institutions are recognizing the “culture of victimhood” as a threat to the First Amendment right to the freedom of speech, and are taking action. A new group at Princeton University, called the “Princeton Open Campus Coalition”, who wrote in an open letter to the University’s president that they “are concerned mainly with the importance of preserving an intellectual culture in which all members of the Princeton community feel free to engage in civil discussion and to express their convictions without fear of being subjected to intimidation or abuse.”

The Arizona state senate has also decided to take action against victimhood culture by passing a bill that would prevent colleges and universities from restricting free speech in a public forum. The Senate approved the bill on a 21-8 vote, and it now goes back to the House for a final vote.

However, Dr. Fahey said, until secular universities and society as a whole once again recognize God and some sense of the transcendent as the center, then there’s no way to escape the rising culture of victimhood as an institutionalized part of society.

“The culture of victimhood can't really come out of a religious society,” Dr. Fahey said.

“I would go so far as to say that if you have an authentically religious culture of any of the traditional religions, you're not going to have this sense of victimhood.”

“In the United States, the religious tradition is Christianity. If you don't recognize that and have some sympathy for the other great religions, then you're never going to escape this problem, instead you're going to build an office to deal with victimhood, and in that action, as long as you have that office, you’ve now made it part of your culture, you've now made it systemic.” 

Photo credit: www.shutterstock.com.

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ROME (AP) -- Armed with shovels and sacks of cold asphalt, Rome's residents fill potholes. Defying rats, they yank weeds and bag trash along the Tiber's banks and in urban parks. Tired of waiting years for the city to replace diseased trees, neighbors dig into their own pockets to pay for new ones for their block....

ROME (AP) -- Armed with shovels and sacks of cold asphalt, Rome's residents fill potholes. Defying rats, they yank weeds and bag trash along the Tiber's banks and in urban parks. Tired of waiting years for the city to replace diseased trees, neighbors dig into their own pockets to pay for new ones for their block....

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VATICAN CITY (AP) -- Casting cancer as a scourge with no boundaries, Vice President Joe Biden came to the Vatican on Friday to call for a global commitment to fund cancer research rooted in appreciation for the real people's lives that doctors and researchers hold in their hands....

VATICAN CITY (AP) -- Casting cancer as a scourge with no boundaries, Vice President Joe Biden came to the Vatican on Friday to call for a global commitment to fund cancer research rooted in appreciation for the real people's lives that doctors and researchers hold in their hands....

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INCHEON, South Korea (AP) -- For much of the world, North Korea is a Stalinist nightmare, an isolated enclave of prison camps, poverty and hunger....

INCHEON, South Korea (AP) -- For much of the world, North Korea is a Stalinist nightmare, an isolated enclave of prison camps, poverty and hunger....

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BEIRUT (AP) -- The Latest on developments in Syria's civil war (all times local):...

BEIRUT (AP) -- The Latest on developments in Syria's civil war (all times local):...

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COSTA MESA, Calif. (AP) -- Raucous protesters and supporters of Donald Trump took to the streets in California leading to some 20 arrests as the Republican presidential contender brought his campaign to conservative Orange County after sweeping the Northeast GOP primaries....

COSTA MESA, Calif. (AP) -- Raucous protesters and supporters of Donald Trump took to the streets in California leading to some 20 arrests as the Republican presidential contender brought his campaign to conservative Orange County after sweeping the Northeast GOP primaries....

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(Vatican Radio)  For a child to be born sick is a “scandalous” problem for humanity.  That was one of Cardinal Gianfranco Ravasi’s reflections Thursday as he opened in the Vatican day one of the Third International Conference on the Progress of Regenerative Medicine and its Cultural Impact.  The President of the Pontifical Council for Culture partnered with the Stem For Life Foundation to organize what has been described as a “historic” three day event 28-30 April to look at the complex cultural and social framework of illnesses and at cutting edge research into cellular therapies.In her opening remarks, the President of Stem For Life, Dr. Robin Smith, pointed to the growing range of therapies currently under study for the treatment of cancer, autoimmune disorders and rare diseases.  The first in the series of conferences was launched five years ago, she noted, to foster a dialogue about the importance of stem cell therapy.  S...

(Vatican Radio)  For a child to be born sick is a “scandalous” problem for humanity.  That was one of Cardinal Gianfranco Ravasi’s reflections Thursday as he opened in the Vatican day one of the Third International Conference on the Progress of Regenerative Medicine and its Cultural Impact.  The President of the Pontifical Council for Culture partnered with the Stem For Life Foundation to organize what has been described as a “historic” three day event 28-30 April to look at the complex cultural and social framework of illnesses and at cutting edge research into cellular therapies.

In her opening remarks, the President of Stem For Life, Dr. Robin Smith, pointed to the growing range of therapies currently under study for the treatment of cancer, autoimmune disorders and rare diseases.  The first in the series of conferences was launched five years ago, she noted, to foster a dialogue about the importance of stem cell therapy.  Since then, the sector has progressed exponentially as scientists became increasingly aware of their ability to be “taught” to transform into a wide variety of tissue, cells and even organs.

Saving lives or playing God?

“Cellular cures are the light in front of us,” she said, but they need to be made more rapidly available to patients.  Super computers and ever-more powerful diagnostic tools are making it easier to identify the right treatment for the right patient at the right time.  The advances in cellular therapy are happening so quickly, she suggested, it will not be long before people begin to ask: can we design our own child?  Choose its hair and eye colour, its height and intelligence?  Can we turn back time and reverse aging?  Are we playing God?  The philosophical and ethical questions abound.

Smith invited us to have tissues at the ready for the heart-wrenching stories we were about to hear.  Stories like Good Morning America anchor Robin Roberts’ exhausting battle with breast cancer which evolved into any doctor’s worst nightmare: Mylodisplastic  Syndrome (MDS) or pre-Leukemia. She was told she had less than two years to live. But thanks to her sister, Sally, Robin received a perfect match for a bone marrow transplant that saved her life.

Transplants and “Reengineering” can transform lives

We heard that more than 70 disorders can be treated with bone marrow transplants.  Nearly half of the 50,000 such transplants performed around the world each year require a donor.

Though national registries have made matching up donors to patients easier in recent years, finding the right fit can take months. That, even though there are more than 20 million voluntary bone marrow donors worldwide.  Scientists are finding ways to train bone marrow cells to adapt to new hosts so they won’t be rejected by the body’s immune system.  They’re also finding promising new techniques by taking a patient’s own cells and re-programming them to fight off “bad” cells.  One such technique is called “chimeric antigen receptor T-cell therapy,” a revolutionary but experimental treatment which reengineers the patient’s cells to kill off all cancerous cells.

17 year old Nicholas Wilkins was diagnosed with the most common childhood cancer, Acute Lymphoblastic Leukemia, a cancer of the blood and bone marrow, at age 4.  After repeated relapses, he received a bone marrow transplant from his sister. But even that didn’t work. In 2013, his desperate parents enrolled Nicholas in a trial at the Children’s Hospital of Philadelphia where doctors reinfused reengineered T-cells back into his body to attack the cancer.  Three years later, he is cancer free and doctors are hopeful he will stay that way because the “good” T-cells are continuing to fight the cancer.

Researchers are hopeful this technique can be just as promising in the treatment of other diseases, such as rare and autoimmune disorders.

90% of kids with cancer die in developing nations

Georgetown University Health Care Ethics Professor Fr. Kevin Fitzgerald, sj told us that some 80-90% of children with cancer in industrialized countries are cured while 90% die in poor countries.  The moral imperative, then, is to ensure adequate medical care in developing countries: an invitation to policy makers, businesses, the pharmaceutical sector and medical and research communities to collaborate to make this a reality.  And, he reminded us that as the largest health care provider in the world, the Catholic Church is ready to partner with them.

Eugene Gasana Jr was 13 when he was diagnosed with Hodgkin lymphoma in 2011 and after intensive chemotherapy and radiation therapy in New York, he has been in remission. But Eugene wasn’t satisfied with just getting better himself.  He wanted kids in his home country of Rwanda to have access to similar, high quality medical care.  Thanks to a Foundation set up in his name and donors, his paediatric oncologist, Dr. Tanya Trippett of Memorial Sloan Kettering Cancer Center, is heading up a program to provide a hospital and cancer care for children in Kigali for the east African region.

According to Trippett, serving cancer patients in Rwanda and other parts of Africa is a challenge because of the lack of quality diagnostic equipment and in some cases, the absence of chemotherapy and cancer drugs.  The infrastructure is poor and oncologists are few.  Patients go hungry in hospitals which also struggle to provide follow-up care for families who live far away.  She wants to see more cooperation between Western hospitals and clinical professionals to provide training to Rwandan and other African doctors, nurses and hospital staff and greater access to funding.

Dr. Raphael Rousseau, Medical director of Genentech, a member of the Roche pharmaceutical group, would like to see more clinical trials in developing countries, using the same rigorous standards as Western trials.  He says he’s frustrated that drugs are not getting soon enough to children with cancer and appealed to drug companies to develop new therapies for cancer, especially in developing countries “where cancer is lethal.” This not an area of competition, he said, “we’re all in it for a good cause.”

Cord blood’s life-saving stem cells

Dr. Joanne Kurtzberg of Duke University Medical Center works with cord blood stem cells to find cures for brain diseases like cerebral palsy, or autism, and in some cases, with remarkable results.  Not long ago, after a woman gave birth, the placenta used to be thrown out in the trash, she said.  But now, the stem cell-rich material can be frozen and stored, perhaps for decades, in the some 700,000 public cord blood banks around the world until it is needed for therapy. Some four million banks preserve cord blood for private use. Cord blood can be an alternative source, she said, for patients who can’t find a matching donor.

Dr. Yong Zhao of Hackensack University Medical Center is finding encouraging results using cord blood cells for multiple autoimmune and inflammation-related diseases.

The rare disease challenge

The new treatments evolving are many: “nano technology,” “nano chips,” “gene therapy” and “gene editing” were some of the terms thrown out by the U.S. National Institute of Health’s Dr. Stephen Groft who said 4-8% of the population suffers from a rare disorder. Some 8,000 rare diseases have been identified, and most have a genetic origin, but more diseases are occurring and mutating. Multiply that by family and friends, he said, “and you have a big population affected by rare diseases.”  A lack of information on such disorders, misdiagnosis and lack of treatments are the real challenges facing patients with rare diseases.

But Dr. Groft is among a number of health experts worldwide who are compiling data bases of patients, doctors, symptoms, and treatment protocols so that the global health community can study these rare diseases and communicate with each other about them.  Social media plays a big part here, he said, as patients exchange their stories and search for clinical trials in which to participate and doctors looking for colleagues who have come across similar patient cases.

We heard about 14 year old Johnathan who suffers from a disorder known as “Butterfly disease,” a frightfully painful condition that makes his skin as fragile as powdery butterfly wings but has nothing to do with the beauty of the delicate creature.  Johnathan and his mom spend hours each day dressing him, bathing and changing the bandages covering the sores on much of his frail body. Here was one of the many times  I reached for a tissue on Thursday.   Johnathan knows he probably won’t survive past his mid- 20’s.

Then, there were the children with Batten disease, which one father described as a “thief” which comes in the night to steal away your small child’s vision, his brain, his ability to walk and talk.  And, the kids suffering childhood blindness who are receiving encouraging help with gene therapy.

Dr. Neil Warma of Opexa Therapeutics, is working with personalized T-cell vaccines to fit each individual’s patient’s profile to treat an array of autoimmune disorders including Multiple Schlerosis and NMO so the body can repair itself. New therapies are also evolving in the treatment of Type 1 Diabetes or juvenile diabetes giving fresh hope to patients suffering from this debilitating disorder too.

Tracey McClure

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This year’s pilgrimage to the diocesan shrine of Our Lady of Fatima of Namaacha in Maputo is dedicated to the Year of Mercy: “Merciful as the Father.”The Month of May is set aside for to devotions to the Blessed Virgin Mary. The faithful in the various parishes of the Archdiocese of Maputo, Mozambique and other parts of the country are preparing for the annual pilgrimage that will take them to the diocesan shrine of Our Lady of Fatima of Namaacha in the province of Maputo. This year’s pilgrimage starts on 6 May 2016.Traditionally, every year, thousands of Catholics from all parishes in the Archdiocese of Maputo gather to honour the Virgin Mother. Auxiliary Bishop of Maputo, Bishop João Carlos Nunes has said that the central theme of this year’s pilgrimage, “Merciful as the Father,” is he overall message of the Jubilee Year of Mercy as proclaimed by the Holy Father, Pope Francis.The Maputo Auxiliary Bishop has called on all the faith...

This year’s pilgrimage to the diocesan shrine of Our Lady of Fatima of Namaacha in Maputo is dedicated to the Year of Mercy: “Merciful as the Father.”

The Month of May is set aside for to devotions to the Blessed Virgin Mary. The faithful in the various parishes of the Archdiocese of Maputo, Mozambique and other parts of the country are preparing for the annual pilgrimage that will take them to the diocesan shrine of Our Lady of Fatima of Namaacha in the province of Maputo. This year’s pilgrimage starts on 6 May 2016.

Traditionally, every year, thousands of Catholics from all parishes in the Archdiocese of Maputo gather to honour the Virgin Mother. Auxiliary Bishop of Maputo, Bishop João Carlos Nunes has said that the central theme of this year’s pilgrimage, “Merciful as the Father,” is he overall message of the Jubilee Year of Mercy as proclaimed by the Holy Father, Pope Francis.

The Maputo Auxiliary Bishop has called on all the faithful of the diocese to live the mercy of God intensely by giving and seeking forgiveness in their lives. They should strive to transform lives by engaging in the spiritual and corporal works of mercy.

Namaacha pilgrimage organiser, Father Ercílio Manhique has said that the great diocesan event is an opportunity for the faithful of the diocese to strengthen their faith. The pilgrimage is not a leisure outing picnic as some people tend to think. As such, the Church wishes to call for a sober atmosphere to prevail throughout the spiritual event.  "All pilgrims must desist from behaviour that incites violence and disturbs the ordinary course of prayers and sacred climate, " Fr. Manhique emphasised.

The pilgrimage will be characterised by three days of intense prayer and spiritual activities.

(Hermínio José, Maputo)

Email: engafrica@vatiradio.va

 

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